". . . our stories are what make the difference, and if we can tell them honestly we can hope to help each other. In the end, we have nothing to offer each other but our stories." ~ Emma Lou Thayne

Monday, June 28, 2010

This is for YOU, BUG!! Connor Doran auditioning for AGT - BEAUTIFUL

Today I have Emily at Is This Really My Life to thank for bringing this to my attention. So go follow Emily!!

Connor Doran was diagnosed with Epilepsy at the age of 4. Here he is auditioning for America's Got Talent! Just a BEAUTIFUL STORY!!

WHY did this touch me so??? 
Do YOU know anyone with epilepsy??? 

I have a beautiful friend whose darling son has an epilepsy related disorder!
He has seizures ALL the TIME!!

My friend has a blog ALL about him and the daily struggles they endure. She tells it ALL; happy moments,  scary seizures, fighting for docs to REALLY LOOK at what's going on... There many different kinds of seizures he deals with on a daily basis. She talks about the stigma they face, the misunderstandings of those around them. Her son HAS a DISORDER, but she REFUSES to allow it to DEFINE HIM! 

This cute boy's nick name is BUG!! And BUG is so LUCKY to have a mom/family that love him SO much and will fight his fight along his side and be his champion all the way!!! I am amazed and inspired by the patience, endurance, and ambition that they battle this with. Please follow Bug's story and help them educate others and be AWARE!

Help people understand epilepsy!

Here is some GREAT INFORMATION I gleaned from BUG's BLOG:

Seizure Facts and Myths

Epilepsy is described as the tendency to have repeated seizures that start in the brain. 

Epilepsy is NOT a disease.

Epilepsy is ususally only diagnosed after the person has had more than one seizure.

Epilepsy is the third most common neurological disorder in the US after Alzheimer’s disease and stroke.

Epilepsy is NOT a psychological disorder.

It is equal in prevalence to cerebral palsy, multiple sclerosis and Parkinson’s disease combined.

1 in 3 adults know someone with the disorder.

1 in 10 people will have or have had a seizure at some point in their lives.

Nearly 2 in 100 people are currently diagnosed with epilepsy/seizure disorder.

Anyone can have a seizure if the circumstances are right, but most people do not have seizures under ‘normal conditions’.

Deja Vu is a form of seizure.

Approximately 200,000 new cases of seizures and epilepsy occur each year.

The incidence of Epilepsy is highest under the age of 2 and over 65.

In 70 percent of new cases, no cause is found.

Males are slightly more likely to develop Epilepsy than females.

25,000 to 50,000 people will die of seizures and related causes each year in the U.S.



Amy said...

what a wonderful post. I have had seizures and so has my youngest. Neither are epilepsy related, but still very scary

Nett said...
This comment has been removed by the author.
Nett said...

Oh Holly, thank you. Not only did Connor make me misty eyed but your sweet words brought me to tears as well.

Amy, HUGS TO YOU! I can not imagine what it is like to both have seizures and have a child with seizures...talk about exhausting!

We are two seizures into a new day...and you bet I will Blog about it. :)

Thanks again Holly! You are a peach! Stop making me cry. :)

Emily said...

Hey Holly. I just wanted to say thanks for stopping by my Thought Blog!

I really appreciated this post. I, in fact, have epilepsy. I was diagnosed at age 12. I have petit mal seziures, which are less noticeable than grand mal. I have had 3 grand mal, though. It's a very frustrating condition, one in which limits a lot of things you can do (like driving) which has had a profound effect on my life.

The more information people have about epilepsy the better. :)

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